Saturday, November 28, 2009

Medicare Part D- Tips, Tricks and More!

Hello!  As I have stated in a previous blog, I had worked for a Medicare part D supplemental insurance company in the past, and have learned a lot of tricks on how to obtain some of your medications at little or no cost AND how to receive extra help paying for your medications while in the dreaded coverage gap (aka the donut hole).  I have compiled a list of resources to help people out and an explanation as to what each of the stages of Medicare part D prescription plans consist of.  Click here to read more.

Thursday, November 26, 2009

Thanksgiving Prayer

Dear God,
I hope that I show you how much I love and appreciate You each and every day.  There have been times throughout my life where I have had to struggle, but I have never doubted that You were with me.  I sometimes wonder why I am experiencing so much pain, whether it be physical or mental, but I know that this is just a part of life, and I am not the only one who feels these emotions.
It is amazing, God, how my life has played out.  I have always known that You have a plan for each of us, and that those who trust in You will be rewarded, but I never could have imagined that You would bless me as much as you have done.
God, I thank You for blessing me with a beautiful daughter.  She was very tiny, and it was a struggle for her and for myself in the beginning of life, but I knew You were with me throughout the whole experience.  I remember feeling the security and warmth as she lay in the NICU under her little isolette.  You had calmed me when I should have been a complete mess.  You let me know in a way that only you can that everything would be just fine.  I trusted in You dear God, and You were right!  She is a happy, healthy 3 1/2 year old princess today.
God, I know that my first marriage ended in a divorce, but I feel that the reason that You had guided me to my daughter’s father was to have my daughter.  My kidneys were not going to wait until I found the perfect soul mate.  There is no reason to look back and wonder what the outcome would be had everything been different, as everything has laid out perfectly.
Despite a marriage that did not last, I am now forever connected with an amazing extended family:  my daughter’s grandfather, step-grandmother, great grandmother, and uncle.  These people are a testimony to Your love and devotion to us.  Throughout all obstacles, they have stood by me and my daughter, only looking out for what is best for us.
My daughter’s father has cut all connections with his father.  God, I know it hurts my daughter’s grandfather more than words can explain, but I also know that it is for the best.  Her father is not a true believer in You, and despite all of the blessings that You have placed in his life, he chooses to live by his own rules.  Dear God, I ask You to comfort my daughter’s grandfather during his toughest times, as he is truly an amazing person.
I thank You God for leading me to my husband and his daughter.  I wake up every morning smiling and go to bed every evening with that same warm smile.  Even with being as sick as I am, my husband has stood by me.  He has never known me to be healthy, yet he does not see the sick me.  He sees me for what I believe in and who I am beneath all of these illnesses.
His daughter, my-step daughter, is an absolutely beautiful little girl inside and out.  God, she loves You and truly lives by You.  She has had so much heartache for a child so young,  and yet she has never strayed from You.
I have the most wonderful family that anyone could ever dream of.  Dear God, I thank you for all you have given me.  I promise to always believe in You and to help others find their way to You.  I love You.
In Jesus name I pray, Amen.

Sunday, November 22, 2009

Fibromyalgia Flare-Up Rant

Fibromyalgia is one of those incredible diseases in which you never know what each day will bring.  I almost wish that I got a memo to let me know what would be hurting me the following day so that I may plan my activities accordingly.

I have been suffering with Fibromyalgia since 2002, however, I have never had a flare up that has lasted for this long!  It has been 7 agonizing months since my current Fibromyalgia flare up has begun, and there is no sign of it backing down.  I have tried everything and anything that have been suggested with no success, and I am fed up.

Muscle relaxers do not help, narcotics do not help.  I cannot take a bath, as the tub is too hard of a surface to sit on.  The couch does not offer enough support and creates a restlessness in my hips that I cannot shake.  The TENS unit feels good as long as I am using it, as does the heating pad, and no longer than that.  We did manage to sweet talk Brent's father into giving us their memory foam mattress and that has been the only saving grace. 

Muscles burn and tense up from my shoulder blades down to the back of my thighs.  I can actually feel the muscles contracting, which is a very strange and uncomfortable feeling.  Sitting or laying in one position for more than 5 minutes is impossible.  I have got to keep shifting the weight of my body from one side to another.  I catch myself clenching my jaw throughout the day from the muscle pain that just will not let up, and I grind my teeth in my sleep all night long.  Brent tells me that the sound of me grinding my teeth is so loud that it wakes him up from a dead sleep.  This is a man who wouldn't wake up if you told him that he had won the lottery, and the poor thing is waking up from my jackhammer jaws. 

I have random stabbing pains in my hips.  All I can think of to describe it as is a long needle being forced into my hip repeatedly as if it were a dart board.  Soft massages help, but any sort of real pressure will send me flying out of my pants.

My clothes feel as if they are rough.  Imagine wearing a shirt lined with short pine needles, and every time you move, the needles scrape against your skin.  Now imagine wearing that pine needle lined shirt on top of a sunburn. Ouch!  Yes, that is what my clothing feels like.  I spend a lot of time during the day wearing nothing more than underwear (blinds closed of course!).  My 3 1/2 year old daughter thinks its fun and takes her clothing off too.  She wants to be like mommy.  My poor angel, if she only knew!

Put any sort of pressure onto my skin, even the slightest touch, and I flinch.  I feel as if I am one big gigantic bruise, and not one of those light bruises.  I feel like a deep purple, black, and red fresh bruise.  It is hard for people to understand how much pain they inflict by touching me at times, and I feel so horrible for backing away before physical contact. 

I am so tired of trying medication after medication, and having to wait a few weeks to see if they will help me out.  I am beginning to think that Fibromyalgia is a disease with no relief.  The only thing I can do is pray that tomorrow will be the day that I wake up flare free.  

Promises to myself

As I sit here tonight on the couch, I can only wonder how long I will be able to last before my body tells me that it is time to get back into my comfy bed.  This is the time of the day that I miss most.  The kids are in bed, the dog is curled up next to me and I can finally catch up with my husband... if only I could tolerate sitting in the upright position.  I do not know when the last time I was able to sit on the couch for a whole evening and just relax.  I used to love getting into bed, but now it seems as if it is something that I am unable to get away from.  I have to start taking better care of myself.

Fibromyalgia has been out of control, and now Lupus is coming back with a vengence.  I'm not too sure what I did to start this rebellious behavior within my body.  I have been being a very good girl.  I have been trying my hardest to learn to let things go.  If there are dishes in the sink when I go to bed, if the garbage hasn't been taken out yet, if the laundry piles up, well... the walls are not going to cave in.  Do you know how hard this is for me to let things get a little bit sloppy from time to time?  I don't think its just a me thing, a woman thing, or even a mom thing.  Its a control thing!  And by the way, when did I get to be so controlling? 

You know, the funny thing is that I am controlling only in the fact that I want the house to be perfect and clean at all times.  Heck, when it comes to my children's behavior, that is completely out of control.  I am a push over.  I tell them to do something, and sometimes they listen, sometimes they look at me as if I'm nuts.  Well, not any more my dear children.  I love you very much, but its time for respect for mom.  God help me to stay strong and finally go through with this new routine.

These are my promises to me:  I promise to let others do housework and not criticize how it is done.  I promise to buy frozen meals from time to time.  I promise to follow through with the chore list for the girls.  I promise to ask Brent for help.  I have no other choice but to organize my life, as I can barely get myself out of bed, nevermind run the house by myself.